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Health care reform at last! Score one for “open”

by Ahrash Bissell

The US Congress finally – finally! – passed a comprehensive health care reform package yesterday. This is fantastic news for all Americans, and indeed perhaps the globe. We can quibble about details of how it could have been even better, but the fact is that this legislation contains many crucial facets that should be part of the right to decent health care for citizens of any developed country, and indeed for any human on the planet. This is a good day indeed. Let’s hope that the Senate shepherds it through quickly.

So what does health care have to do with “open”? Much more than you might at first think. Let me illustrate a few of the ways…

  • Innovation requires risk. Intellectual risk, for sure, but perhaps more importantly, risk to your finances, to your family, to your future. To do something new and innovative, and especially to go against the grain, as so much of open science, open education, and other similarly motivated ideas run, is to take on significant personal and professional risk. In America, that risk to individuals is unacceptably high, given that it often includes foregoing such basic guarantees as health care. Health care reform means that we have lowered the threshold for action by the innovators of tomorrow. Don’t be afraid to take a chance, we’ve got your back.
  • The grand challenges we face as a society – climate change, public health, energy security, to name a few – these problems are big. They are burly. They resist simple reduction into a controlled study here, an opinion poll there. To get a handle on these issues, we need data – lots of data. And we need collaboration – massive, distributed collaboration. And we need cooperation, even among competing interests, where the system positively reinforces activities the reduce the risks to society even as it improves the bottom lines of the businesses involved. Health care reform holds the potential to shift the focus from profit to care, from rendering tests to preventing disease, all of which requires greater openness, and greater sharing. Look for a revolution in public health research and outcomes in the years to come.
  • Health education is desperately needed around the globe. Many institutions are trying to share their medical education materials more broadly, but the costs are high, and there are thorny thickets of laws regarding health records, medical images, and other patient-oriented data which impede sharing. People are rightly reluctant to provide personal health information publicly for fear that the insurance companies can use it against them. Health care reform eliminates this fear, thereby opening the floodgates for public health data and associated educational materials to be shared, adapted, and localized the world over. The era of educational opportunities, personal genomics, and patient empowerment is here, and openness is a big part of the picture.

There will be people who will try to stop all progress. There will be those who will try to exploit the complexities in the system and throw obstacles in our way. But we have to seize this chance to catalyze a more open and effective society, in education, in science, in everything. Our health care “system” is so broken, it’s hard to believe there any defenders left. But as with our education “system,” which is similarly dysfunctional, change has proven more difficult to implement than it is to talk about. How refreshing to see action in Congress instead of so many words. Yes, there is still room for vast improvement, but enough dithering. The future awaits, and it looks more open than ever.

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